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House advances bill to create Vermont Rare Disease Advisory Council
Summary
Lawmakers advanced H.46 to create a Rare Disease Advisory Council within the Vermont Department of Health, outlining membership, duties, a July 1, 2026 effective date and minimal fiscal impact.
The Vermont House on Tuesday advanced H.46, an act to establish a Rare Disease Advisory Council within the Department of Health to advise state decisionmakers on barriers facing people with rare diseases.
The bill would set council membership to include two individuals with a rare disease, a parent or guardian of someone with a rare disease, department designees, a representative of the Health Equity Advisory Commission,…
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