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University‑backed Red Hill Registry reports pre‑enrollment progress, public resources and feasibility report to Congress
Summary
The Red Hill Registry told FTAC it has launched a pre‑enrollment website, hired staff, published a feasibility report to Congress recommending an epidemiological health outcomes study, and plans a formal enrollment event in mid‑2025.
Tara Sutton, director of community engagement for the Red Hill Registry at the University of Hawaii, updated the Fuel Tank Advisory Committee on registry development, community outreach and a feasibility report submitted to Congress.
The registry team said year‑one priorities included building infrastructure, co‑creating the registry with community input and delivering a congressional feasibility report on performing an epidemiological health outcomes study. The registry team reported website upgrades (redhillregistry.org), active social media accounts, staff hires and the launch of pre‑enrollment for people who believe they were exposed.
Major points - Infrastructure and staffing: The registry reported new hires and planned job postings; the team said positions would be Hawaii‑based and the registry seeks candidates with lived experience of the Red Hill water crisis. - Outreach and community engagement: The registry held focus groups, collected 58 community survey responses, launched a community advisory workgroup and intends to provide participant resources, provider education materials and a community resource and referral platform. The registry plans educational products in multiple formats and said it will offer materials for providers (exposure scenario briefs, trauma‑informed care and clinical guidance) and resources for affected residents. - Feasibility report to Congress: The registry said it concluded an epidemiological health‑outcomes study is both feasible and necessary; the report covered recruitment strategies, exposure metrics, enrollment criteria and analytic approaches. The registry said the report is posted on redhillregistry.org. - Enrollment and water data mapping: The team said it is testing IT platforms for secure consent and data protections and is working with water experts to map Navy SafeWater data visually. The registry expects a formal enrollment event around July–August 2025.
Ending: The registry emphasized co‑creation with impacted communities, plans for a community survey for those unable to attend listening sessions and intent to make resources broadly available beyond formal enrollees.
