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Task force urges pediatric hospice program, pilot funding after families report lack of in‑home options
Summary
A state working group recommended developing a pediatric hospice and palliative care program after testimony from families and clinicians about gaps in in‑home end‑of‑life services for children. The panel recommended a center of excellence for nurse training and a statewide coordinated pilot to expand home hospice availability.
HARTFORD — Parents, pediatric specialists and hospice leaders told the Public Health Committee that Connecticut lacks a coordinated pediatric hospice program to support children with life‑threatening illnesses and their families at home.
“I can guarantee you that over the next year, someone in this room will personally experience or have a loved one experience the indignity, discomfort, and safety risks associated with hallway care and hospital boarding,” Dr. Craig Moore, an emergency physician and working group member, told the committee — urging the assembly to act on recommendations to expand hospice and palliative options for…
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