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Local Creutzfeldt-Jakob Disease group thanks Tigard for grant support and outlines October awareness walk
Summary
Representatives of the Creutzfeldt-Jakob Disease Foundation described the foundation's work supporting families, research and education, thanked the city for a 2024 grant that supported their 'Strides for CJD' walk, and announced the walk date for October 11, 2025.
Representatives of a local Creutzfeldt-Jakob Disease (CJD) foundation briefed the council on April 22 about their work supporting affected families, raising awareness and funding research, and thanked the city for a 2024 grant that helped host a local “Strides for CJD” walk.
Rebecca Rich and Emily Wicker described CJD as a rapidly progressive, degenerative brain disease that is always fatal, noting typical symptoms and the short time from symptom onset to death. Rich and Wicker said the national CJD Foundation distributes funds to family support, research grants and education for medical professionals and funeral directors.
The presenters said their Cook Park walk has grown and that last year’s nationwide Strides efforts raised nearly $700,000 for the national foundation. They said the local walk will be on Saturday, Oct. 11, with events beginning at 11 a.m., and they described partnerships that involve local high-school students and volunteers.
Why it matters: The presentation raises awareness about a rare but severe neurological disease and explains the role of local nonprofit activity in supporting affected families and research.
What’s next: The group asked for continued public support and volunteers for the October event and thanked Tigard for prior grant support.
