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Committee backs creating Montana Rare Disease Advisory Council; small appropriation in fiscal summary
Summary
Representative Paul Tuss sponsored a bill to establish a Montana Rare Disease Advisory Council to inventory needs, coordinate stakeholder input and report to policymakers; committee moved the bill to the floor with an $8,000-per-year fiscal estimate in staff summary.
Representative Paul Tuss told the House Human Services Committee that House Bill 9 43 would establish a Montana Rare Disease Advisory Council to gather information about the needs of Montanans living with rare diseases, and to identify gaps in care and research. "This advisory council will also be in a unique position to inventory what resources are already available in our state to help…
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