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Parent describes repeated barriers to pain care, therapies and AAC for her nonspeaking autistic son
Summary
A parent at a World Autism Awareness Day session recounted diagnostic delays, repeated clinical dismissals and difficulty accessing communication supports and appropriate medical care for her nonspeaking autistic son, urging clinicians and schools to take parent concerns seriously and to prioritize basic communication access.
At a World Autism Awareness Day panel, Gayatri Vasan of Bangalore described her family’s struggle to obtain consistent medical care, effective therapies and communication supports for her nonspeaking autistic son, whom she said became nonverbal after a surgical anesthesia event. She urged medical and education professionals to take parent observations seriously and to prioritize basic communication access and pain management rather than assuming behaviors are “just autism.”
Vasan recounted that initial diagnostic pathways left her and her husband “completely at sea” and that subsequent clinical encounters often dismissed…
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