Get Full Government Meeting Transcripts, Videos, & Alerts Forever!
Committee hears request to make Minnesota Rare Disease Advisory Council funding permanent
Summary
The Minnesota House Health Finance and Policy Committee heard testimony on House File 1501, which would make the current fiscal-year funding for the Minnesota Rare Disease Advisory Council an ongoing base appropriation; supporters said the council helps speed diagnosis and advise on cutting-edge therapies.
The Minnesota House Health Finance and Policy Committee on Friday heard from lawmakers and the executive director of the Minnesota Rare Disease Advisory Council on House File 1501, a bill that would make the council’s current fiscal-year funding an ongoing base appropriation.
Supporters told the committee the council helps patients with uncommon conditions get diagnosed faster and advises state agencies and the Legislature on treatments such as gene therapy. Erica Barnes, executive director of the Minnesota Rare Disease Advisory Council, said the council’s mission is to improve care for the…
Already have an account? Log in
Subscribe to keep reading
Unlock the rest of this article — and every article on Citizen Portal.
- Unlimited articles
- AI-powered breakdowns of topics, speakers, decisions, and budgets
- Instant alerts when your location has a new meeting
- Follow topics and more locations
- 1,000 AI Insights / month, plus AI Chat
