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Committee hears bill to establish advanced universal newborn screening and raise funding cap
Summary
House Bill 2,399 would establish an advanced universal newborn screening program in KDHE, expand the conditions screened in alignment with the federal Recommended Uniform Screening Panel and raise the statutory spending cap on the newborn screening fee fund to $5 million to sustain recent program expansions.
The House Health and Human Services Committee heard House Bill 2,399, which would establish an advanced universal newborn screening program administered by the Kansas Department of Health and Environment and increase the statutory cap on the newborn screening fee fund to $5,000,000.
Carly reviewed the bill's provisions: creation of an advanced newborn screening program in KSA 65-180, authority for the secretary of health and environment to identify conditions to include on the screening panel (including conditions on the federal Recommended Uniform Screening Panel, or RUSP), a registry and follow-up program, reimbursement and purchase options for medically necessary food treatment products, and related…
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