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Members warn dissolution of newborn‑screening advisory committee risks lives; lawmakers press to reauthorize newborn screening program
Summary
Multiple members told the Energy and Commerce Subcommittee that dissolving the federal advisory committee that recommends additions to the newborn screening panel threatens a process that routinely identifies treatable, life‑threatening conditions in infants.
Multiple members used the Health Subcommittee hearing to press for swift action to reauthorize and restore federal support for newborn screening programs after members said the advisory committee that recommends conditions be added to the Recommended Uniform Screening Panel (RUSP) was dissolved without advance public notice.
Why it matters: Newborn screening identifies conditions at or shortly after birth that, if detected early, can be treated to prevent irreversible harm or death. Members said the federal panel that advises which conditions should be added to the RUSP — the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) — was recently disbanded, interrupting a process that helps…
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