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UConn Health and Jackson Lab seek continued funding to expand EndoRISE endometriosis biorepository and outreach
Summary
UConn Health and the Jackson Laboratory asked the Appropriations Subcommittee to fund expansion of the EndoRISE endometriosis biorepository and statewide outreach mandated by Public Act 23‑67, citing a growing sample bank and the disease's health and economic burden.
UConn Health and the Jackson Laboratory asked legislators to continue and scale state funding for EndoRISE, a public endometriosis tissue and data biorepository created under Public Act 23‑67.
Danielle Luciano, interim chair of obstetrics and gynecology at UConn Health and co‑director of EndoRISE, told the committee endometriosis affects about one in 10 people assigned female at birth and often begins in the teenage years; she said the disease "has an estimated cost of health care management in the United States of greater than $20,000,000,000 a year." Luciano described the program's clinical and educational work, including outreach to school nurses and clinician education.
Elise Courtois, co‑director from the Jackson Laboratory, said the tissue and data biorepository "now holds over 2,000 biospecimens and clinical data" and described pilot milestones and interest from other hospital systems and diagnostic developers. Courtois asked the committee to continue funding beyond the FY25 pilot level so the program can expand statewide sample collection, ensure diverse representation and support diagnostic and therapeutic research collaborations.
Ending
No committee votes were taken at the hearing. EndoRISE leaders asked lawmakers to maintain and grow state funding to meet the statutory goals set by Public Act 23‑67 and to sustain the biorepository, provider education and community outreach.
