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Families, Clinicians Push Insurance Coverage for Genetic Craniofacial and Dental Disorders
Summary
Testimony in favor of House Bill 12‑57 and Senate Bill 7‑12 urged insurers to cover medically necessary treatment for congenital craniofacial and genetic dental conditions (e.g., amelogenesis imperfecta, dentinogenesis imperfecta, ectodermal dysplasia). Witnesses described functional impairments, lifelong treatment needs and CHIA cost estimates.
Representative David Murray and clinicians urged the committee to support House Bill 12‑57 and Senate Bill 7‑12, which would require insurers to cover medically necessary care and lifetime maintenance for certain congenital craniofacial and dental disorders that insurers often classify as dental or cosmetic and deny.
Representative Murray told the committee that treatments for rare craniofacial conditions restore basic functions such as eating and speaking and stressed the historic medical work in the field. “This bill would restore dignity and certainly provide a tremendous benefit to…
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