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Committee backs rare‑disease advisory council bill to collect data, advise policy
Summary
HB 943 would create a Montana Rare Disease Advisory Council to inventory services, collect outcome data and advise state agencies; sponsors and DPHHS informational witnesses said the council would help identify gaps for families and caregivers and requires modest appropriations.
Representative Paul Tuss told the House Health and Human Services Committee that House Bill 943 would establish a Montana Rare Disease Advisory Council to gather information on resources, research and gaps in care for Montanans living with rare diseases. "We don't know what we don't know," Tuss said, arguing the council would elevate…
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