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Senate bill aims to balance Montanans’ DNA and neurodata privacy with clinical research access
Summary
SB163 would extend state privacy protections to genetic and neurotechnology data while allowing limited waivers for clinical research; sponsors and industry grappled with consent timing, cross-border storage and enforcement during a lengthy committee hearing.
Senator Daniel Zolnikov opened Senate Bill 163 by describing two intertwined goals: clarify prior DNA privacy measures and add protections for emerging neurodata while allowing narrow research waivers. "You have the right to consent of it being collected, have the right to have it deleted," Zolnikov said, describing prior law that gave Montanans unusually broad control over genetic data.
Zolnikov told the House Energy, Technology and Federal Relations Committee that the bill pares back an absolute deletion right by creating a written-waiver process for clinical research and clarifies definitions for…
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