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Sickle cell advocates urge the legislature to declare disease a public‑health priority and expand services
Summary
Patients, clinicians and the Massachusetts Sickle Cell Association urged passage of H1346/S788 to establish a sickle‑cell steering committee, expand MassHealth care coordination, fund centers of excellence and create a state registry to address longstanding treatment, research and equity shortfalls.
A large, multi‑panel portion of the hearing focused on bills H1346 and S788 to improve sickle cell care. Leaders from the Massachusetts Sickle Cell Association, clinicians from major medical centers and people with lived experience asked the committee to report the bills favorably and to prioritize the disease as a statewide public‑health concern.
Jackie Haley (Massachusetts Sickle Cell…
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