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Red Hill Registry expands outreach, posts congressional feasibility report and pre‑enrollment
Summary
The Red Hill Registry reported building staff and IT systems, launching pre‑enrollment, offering community referrals and resources, and submitting a congressional report concluding an epidemiological health outcomes study is feasible and necessary.
The Red Hill Registry team said it has spent the past six months building infrastructure, hiring staff and expanding outreach to support people who believe they were exposed to fuel from the Red Hill facility.
"We're building something that is scientifically sound, culturally grounded, and truly co‑created with the impacted community," Tara Sutton, director of community engagement for the registry, said in her presentation to the Fuel Tank Advisory Committee. She described site pre‑enrollment at redhillregistry.org, a planned formal enrollment event in July–August, and a forthcoming community survey and virtual data‑gathering sessions.
Sutton said the registry has completed a congressional feasibility report assessing whether an epidemiological health‑outcomes study is both "feasible and necessary," and the report is available on the registry website. The registry has created a community advisory work group, conducted focus groups and collected survey responses, and launched social‑media channels and an employee recruitment effort focused on lived‑experience candidates.
Registry staff also described plans for a community resource and referral platform to provide education, legal and housing resources, and referrals for health care providers to better serve exposed patients. Sutton said the registry will provide clinical guidance materials for health professionals, public‑facing fact sheets and multimedia resources.
When FTAC members asked when water‑line mapping from the Navy Safe Waters data will be available, Sutton said the registry’s water‑data mapping is expected to be published closer to the formal launch, likely by August but that she could not promise a date without confirming with the water‑data team.
The registry team noted challenges that include a geographically dispersed affected population, distrust of institutions, and decisions about enrollment criteria. They said those issues are being addressed through ongoing community engagement and transparent communications.
