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Legislative hearing: Children's Extraordinary Needs waiver launched; advocates push for more capacity and data
Summary
ODDS told the Senate committee the Children's Extraordinary Needs (CEN) program launched July 1, 2024, is serving 137 children with a wait list of 2,664 as of Sept. 19, 2025; staff said rate-model and billing questions will be addressed in the November legislative report.
State officials gave the Senate Committee on Human Services an update on the Children's Extraordinary Needs (CEN) program created by Senate Bill 91.
Darlene O'Keefe, interim director of the Office of Developmental Disability Services, explained the program was launched July 1, 2024, to allow parents to provide Medicaid-funded attendant care for children with very high medical or behavioral needs. "The CN program was launched on 07/01/2024, providing 155 families to participate," ODDS' presentation said. Eligibility is limited to Oregon residents…
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