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Families and experts urge action on PANS/PANDAS coverage; committee delays amendment to allow engrossing

INSURANCE & COMMERCE - SENATE · March 14, 2019
AI-Generated Content: All content on this page was generated by AI to highlight key points from the meeting. For complete details and context, we recommend watching the full video. so we can fix them.

Summary

Families testified about life-changing responses to IVIG treatment and barriers to coverage for PANS/PANDAS. Sponsor Senator Hammer sought time to refine an amendment with insurers and UAMS; the committee heard testimony but did not adopt the amendment and agreed to return with an engrossed bill next Tuesday.

The Senate Insurance & Commerce committee heard compelling testimony from families and health providers on SB252, a bill intended to create a process for insurance coverage of pediatric autoimmune neuropsychiatric disorders associated with streptococcal infection (PANS/PANDAS) and for related treatment.

Sponsor Senator Hammer described extensive dialogue in recent days among insurers, the University of Arkansas for Medical Sciences (UAMS) and family advocates and presented a multi-page amendment. He asked the panel to hear family…

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