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PACE Foundation, Arkansas clinicians outline PANS/PANDAS clinic model and international IVIG trial
Summary
PACE Foundation and Arkansas clinicians told the Senate Public Health, Welfare and Labor Committee the state’s PANS/PANDAS center is part of a growing international network and is participating in an IVIG clinical trial that could lead to FDA approval and broader access; clinicians stressed early diagnosis and primary‑care outreach.
Paul Ryan, president of the PACE Foundation, told the Senate Public Health, Welfare and Labor Committee that Arkansas’s PANS/PANDAS center is part of an expanding network of multidisciplinary clinics working to standardize diagnosis and care.
"IVIG is a world class game changer," Ryan said, describing an international randomized trial testing intravenous immunoglobulin (IVIG) that he said is now enrolling across U.S. and European centers and is roughly one‑third enrolled. Ryan said the trial, if positive and accepted by regulators, could remove the need for state‑by‑state legislative fixes and improve families’ access to the therapy.
The presenters told lawmakers that PANS/PANDAS…
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