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PACE Foundation urges Arkansas aid as national IVIG trial and incidence study for PANS/PANDAS begins
Summary
PACE Foundation and UAMS told the Senate Public Health committee they are running the nation’s first large IVIG clinical trial and a statewide incidence study for PANS/PANDAS and asked Arkansas health agencies, Medicaid and provider groups to help recruit eligible children for the trials.
Paul Ryan, cofounder and president of the PACE Foundation, told the Senate Public Health, Welfare and Labor Committee that PACE and partner centers of excellence are running two national projects aimed at clarifying how many children have PANS/PANDAS and whether intravenous immunoglobulin (IVIG) reduces severe neuropsychiatric symptoms.
"This disease has very severe OCD," Ryan said in his presentation, describing the sudden onset of disabling symptoms that can follow common infections. He said the foundation is collaborating with UAMS and other academic centers…
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