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Committee backs bill to add spinal muscular atrophy to Arkansas newborn screening

PUBLIC HEALTH, WELFARE AND LABOR COMMITTEE - SENATE · January 30, 2019
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Summary

The committee passed HB1074 to require newborn screening for spinal muscular atrophy (SMA), a genetic disease with an effective treatment when given presymptomatically; sponsor said the test costs $9.10 per child and family witnesses described diagnostic delays and benefits of early treatment.

The Public Health, Welfare and Labor Committee approved House Bill 1074 to add spinal muscular atrophy (SMA) to Arkansas’s newborn screening panel. Senator Hester, presenting the bill, described SMA as a genetic disorder for which an FDA‑approved treatment became available in February 2016; when detected before…

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