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Committee backs statewide Parkinson’s disease registry and records protections

Health Professions and Grama Subcommittee · January 29, 2026

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Summary

The committee approved a PCS for HB 1443 to create a statewide Parkinson’s disease registry at the USF Parkinson’s Disease Research Institute and advanced HB 1445 to exempt registry patient records from public disclosure (the exemption amendment includes a sunset of 10/02/2031).

Representative Bousada/Posada presented the proposed committee substitute for HB 1443 to establish a statewide Parkinson's disease registry within the Parkinson's Disease Research Institute at the University of South Florida. The sponsor said the registry would assist and enhance ongoing research and also proposed adding two appointments to the institute's consortium board (one each by the Florida Senate president and House speaker).

A companion bill, HB 1445, was presented to create a public-records exemption protecting patient health records reported to the registry. The sponsor offered and the committee adopted Amendment Barcode 008581, which provided a constitutionally required statement of necessity and added a sunset date of Oct. 2, 2031.

Both measures were reported favorably by voice/vote (PCS for HB 1443: 18–0; HB 1445 as amended: 18–0).