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RDAC members outline statewide rare-disease events and a proclamation campaign

Connecticut Rare Disease Advisory Council · February 2, 2026
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Summary

RDAC members and partners previewed upcoming events — a March 17 Jackson Laboratory forum, Feb. 20 Yale event, Feb. 17 Bridgeport Islanders night, and a Feb. 24 Rare Disease Day forum in Hartford — and launched a "Connecticut, rare is everywhere" proclamation campaign for Feb. 28.

Multiple RDAC members and guests described a slate of statewide outreach events aimed at raising awareness and building participation. Lisa (filling in for Jody Gillen of BioCT) previewed the Connecticut Rare Disease Forum at the Jackson Laboratory in Farmington on March 17, with a keynote by Tim Yu and panels on gene therapy and…

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