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Connecticut RDAC spotlights patient-specific emergency protocols, urges stakeholder meeting on House Bill 6920
Summary
A public commenter and RDAC members urged state action on patient-specific emergency medical protocols and listed related legislative priorities, including newborn screening expansion and Medicaid coverage for prescribed medical foods; the public health committee will convene stakeholders to pursue next steps.
James Coyne, a Connecticut resident living with complex congenital conditions, told the Connecticut Rare Disease Advisory Council that standardized approaches in emergencies can be dangerous for patients with rare, complex medical histories and urged support for House Bill 6920 to create patient-specific emergency medical care protocols. "Patient specific emergency protocols would ensure EMS providers have access to critical information, including known medical conditions, necessary accommodations, and treatment plans tailored to the patient's unique…
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