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NORD briefs Senate on Rare Disease Day and backs H.46 advisory council
Senate Health and Welfare Committee · February 19, 2026
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Summary
The National Organization for Rare Disorders introduced its programs to the Senate Health and Welfare Committee, described Rare Disease Day activities at the State House and urged support for H.46, which would create a rare disease advisory council within the Department of Health.
Representatives from the National Organization for Rare Disorders (NORD) briefed the Senate Health and Welfare Committee on Feb. 19 about Rare Disease Day and ongoing state advocacy, and urged lawmakers to consider H.46, a bill to establish a rare disease advisory council housed in the…
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