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Industry supports Connecticut genetic‑privacy bill; pathologists urge medical testing carveouts
Summary
Ancestry and other direct‑to‑consumer firms backed HB5128 requiring express consent and deletion rights for genetic data but opposed a private right of action. Medical laboratory groups asked for explicit exclusions for physician‑ordered CLIA‑regulated tests and for laboratory proficiency requirements.
Companies that provide direct‑to‑consumer genetic testing and privacy advocates largely supported HB5128, a bill that would give Connecticut residents greater control over genetic data and limit use for targeted advertising, but several medical groups urged careful drafting so clinical diagnostic testing is not inadvertently regulated.
Richard Engelhardt of Ancestry said the bill follows best practices that the industry…
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