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Families urge lawmakers to recognize Prader‑Willi awareness day at the Capitol; resolution passes after amendment
Summary
Family members and an adult with Prader‑Willi syndrome described life‑threatening hunger, caregiving burdens, and gaps in services, and the committee approved SR567 as amended to designate a day at the Capitol for Prader‑Willi awareness.
A Health and Human Services committee approved a resolution to establish a Prader‑Willi Syndrome (PWS) awareness day at the State Capitol after family members and an adult with the condition described the disorder’s medical and caregiving challenges.
Lisa Matyszak, identified herself as president of the Georgia Association for Prader Willi Syndrome and a researcher for the Foundation for Prader Willi Research, described PWS as a rare, brain‑based genetic disorder that disrupts hypothalamic function and produces an…
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