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Assembly designates Feb. 28 as Rare Disease Day, highlights patient advocates and insurance barriers
Summary
The Assembly adopted ACR 132 recognizing Feb. 28 as Rare Disease Day after multiple members and patient advocates described long diagnostic delays, insurance denials and the need for research. Sponsor Assemblymember Dixon and caucus leaders urged bipartisan support; the clerk recorded 71 coauthors and the resolution passed via voice vote.
The California State Assembly adopted Assembly Concurrent Resolution 132 on Jan. 20, 2026, designating Feb. 28 as Rare Disease Day and highlighting challenges faced by people with rare conditions.
Assemblymember Dixon, vice chair of the Rare Disease Caucus and sponsor of the measure, explained that a rare disease is defined as affecting fewer than 200,000 people in the United States and cited estimates that collectively roughly one in 10…
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