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Committee backs ‘Maddie’s Law’ to add biliary atresia screening to newborn panel
Summary
SB 1574 would add direct bilirubin measurement to newborn testing to detect biliary atresia early; sponsor and a parent testified it is time-sensitive, low-cost to implement and could prevent transplants and deaths if adopted statewide.
Senators on the Appropriations Committee on Health and Human Services reported SB 1574 ("Maddie's Law") favorably after witnesses, including a parent of an affected child, described the condition and argued the screening change is both low-cost and lifesaving.
Sponsor Senator Bracey Davis said biliary atresia is a rare, time-dependent disease in which blocked bile ducts lead to rapid liver damage;…
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