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Families press committee to mandate insurance coverage for PANS/PANDAS treatments
Summary
Parents, clinicians and advocates urged lawmakers to pass HB 5374 to require insurers to cover medically necessary treatments for PANS/PANDAS, including high‑cost IVIG infusions, saying delayed coverage causes lasting harm and other states show minimal premium impact.
Families of children diagnosed with PANS/PANDAS and clinicians told the Insurance and Real Estate Committee that lack of consistent coverage for immune‑targeted treatments imposes severe medical and financial harm and can convert treatable illness into chronic disability. "No one should have to choose between one child over another," said Gabriela True, who spoke about delayed diagnosis and unaffordable treatments for her son and urged…
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