Get Full Government Meeting Transcripts, Videos, & Alerts Forever!
Families urge lawmakers to mandate insurance coverage for PANS/PANDAS treatments including IVIG
Summary
Parents, clinicians and advocacy groups told the Insurance Committee that HB 5374 is needed to ensure insurance coverage for PANS/PANDAS treatments such as intravenous immunoglobulin (IVIG), describing delayed care, financial ruin and clinical evidence that timely treatment can prevent long‑term disability.
Dozens of parents and clinicians gave emotional, detailed testimony supporting HB 5374, a bill that would require insurers to cover certain treatments for PANS and PANDAS, including immune‑modulating therapies such as intravenous immunoglobulin (IVIG).
“Our son should have been diagnosed at 5…we couldn't afford treatment for both kids,” said Gabriela True, president of ASPIRE, recounting years of delayed care and a suicide attempt in one child before…
Already have an account? Log in
Subscribe to keep reading
Unlock the rest of this article — and every article on Citizen Portal.
- Unlimited articles
- AI-powered breakdowns of topics, speakers, decisions, and budgets
- Instant alerts when your location has a new meeting
- Follow topics and more locations
- 1,000 AI Insights / month, plus AI Chat
