Citizen Portal
Sign In

Get Full Government Meeting Transcripts, Videos, & Alerts Forever!

Board staff say MLD petitioner will resubmit; Board may convene newborn screening TAC

State Board of Health Health Promotion Committee · March 1, 2026
AI-Generated Content: All content on this page was generated by AI to highlight key points from the meeting. For complete details and context, we recommend watching the full video. so we can fix them.

Summary

After Metachromatic Leukodystrophy was added to the federal RUSP, a petitioner plans to resubmit to the Board; staff said the Board may convene a Newborn Screening Technical Advisory Committee for comprehensive review and will consider timing at March or April meetings.

Molly Dinardo, Board staff, told the Health Promotion Committee on Feb. 5 that a petitioner will resubmit a request to add Metachromatic Leukodystrophy (MLD) to the state's newborn screening review now that the condition has been added to the federal Recommended Uniform Screening Panel (RUSP).

Dinardo said staff expect the Board may need to convene a Newborn Screening (NBS) Technical…

Already have an account? Log in

Subscribe to keep reading

Unlock the rest of this article — and every article on Citizen Portal.

  • Unlimited articles
  • AI-powered breakdowns of topics, speakers, decisions, and budgets
  • Instant alerts when your location has a new meeting
  • Follow topics and more locations
  • 1,000 AI Insights / month, plus AI Chat
30-day money-back on paid plans