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Board declines to add MPS II (Hunter syndrome) to newborn screening panel, citing limited long‑term outcome data
Summary
After a split technical advisory committee review, the board voted not to add MPS II (Hunter syndrome) to Washington’s newborn screening panel at this time, citing gaps in long‑term outcome evidence and uncertainty about the benefits relative to costs and program capacity.
The Washington State Board of Health voted not to add MPS II (Hunter syndrome) to the state newborn screening panel, concluding that available evidence did not yet justify the addition.
The technical advisory committee (TAC) that reviewed MPS II was split: TAC members found that screening technology and diagnostic tests exist, but they flagged missing long‑term outcome data needed to quantify the benefit of newborn screening. Megan…
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