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Late‑diagnosed advocate Brian urges overhaul of autism diagnosis and autistic‑led supports
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Summary
Brian, a late‑diagnosed autistic and ADHD self‑advocate, told a World Autism Awareness Day panel that delayed diagnosis cost a "lost generation" their education and, he said, may shorten life expectancy. He urged autistic‑led services, neuroaffirming language and low‑cost reasonable adjustments in schools and workplaces.
Brian, a public speaker introduced at the World Autism Awareness Day event, described growing up without a diagnosis, periods of homelessness and a lengthy psychiatric hospitalization that he said became a turning point in his life. "I was always branded lazy at school," he said, recounting relentless bullying and truancy that he linked to being undiagnosed.
Brian said late diagnosis created a "lost education" for many people and urged systems change. He warned that late‑diagnosed autistic people face greater health risks: "the evidence says that, we can expect a shorter life expectancy for those who are late diagnosed. Could be up to about 10 years," he said.
He framed autism as a difference rather than a defect and quoted a common aphorism to emphasize individual variability: "If you've met one person with autism, you've met one person with autism." Brian said that diagnosis can be liberating and help people "become their authentic self," and he criticized what he called an antiquated diagnostic system full of medicalized language that often misses women and leads to misdiagnosis.
On practical supports, Brian urged autistic‑led training and "nothing about us without us," and said reasonable adjustments in schools and workplaces are often low cost and benefit many people. He described using martial arts and mindfulness as strategies that helped his own recovery and urged parents and professionals to tap autistic people's special interests as potential career paths.
The moderator thanked Brian and moved the program to a panel focused on reframing the narrative from cure to shared future.

