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Committee advances bill to require coverage for genetic testing and care for SCN2A disorders
Summary
House Bill 11‑99, as amended, would require coverage for genetic testing and medically necessary treatment for SCN2A‑related disorders; grieving parents testified about delayed diagnosis and barriers to testing. The committee adopted an amendment clarifying that testing must be ordered by a provider and deemed medically necessary by the health plan, and reported the bill as amended.
House Bill 11‑99, sponsored by Representative Jordan, would require health insurance coverage for genetic testing for SCN2A‑related disorders and for medically necessary treatment of associated conditions. The committee adopted an amendment clarifying that services must be ordered by a provider and deemed medically necessary by the health plan.
Jacqueline Dedon and her husband Jacob told the committee…
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