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Rare Disease Advisory Council plans DPH‑hosted website, curated resources and a team for Denise Denzo Foundation walk
Summary
The council discussed building a richer landing page on the Department of Public Health website, legal limits on email outreach and resources, an expansion of the 'In Connecticut Rares Everywhere' map, and forming a council team for the Denise Denzo Foundation walk on April 25.
Council members reviewed recent outreach activities and plans to expand public information and event presence. Colleen Brunetti reported on a successful Rare Disease Awareness Day and described the rollout of an 'In Connecticut Rares Everywhere' map that currently lists nonprofits and support groups; members said they plan to add businesses, research and industry in coming months.
A DPH technical lead explained the department recently…
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