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Committee reviews Genetic Information Privacy Act that would require express, itemized opt‑ins
Summary
The committee heard a detailed walk-through of H639, which would require direct‑to‑consumer genetic testing companies to obtain express, itemized opt‑in consent for uses including storage, third‑party transfers and marketing, allow revocation with 30‑day deletion, and bar disclosure to insurers and government without warrant or consent.
Representative Olson, the reporter for H639, told the committee the bill is a focused consumer‑protection measure aimed at the sensitive nature of genetic information. She said the legislation would create an opt‑in consent structure "the company must allow the consumer to opt in to each specific area," rather than the typical long, global consent forms.
The legislative counsel and bill presenters walked members through key definitions. The bill would regulate direct‑to‑consumer genetic testing companies and their service providers and defines "genetic data" to include DNA, RNA, SNPs and…
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