Get Full Government Meeting Transcripts, Videos, & Alerts Forever!
Committee advances bill to create Rare Disease Advisory Council, leaves per‑diem funding unspecified
Summary
The committee passed H46 to establish a Rare Disease Advisory Council made up of experts, individuals with lived experience and a parent or guardian; the bill includes per‑diem/reimbursement for non‑professional participants (up to 40 days annually) but does not specify a funding source.
The Senate Appropriations Committee advanced H46 on April 23, a bill to establish a Rare Disease Advisory Council and provide resources for long COVID education for primary care providers and patients.
A committee presenter explained H46 would create a council composed of various rare‑disease experts, two individuals with lived experience, a parent or guardian of someone with a rare disease and a representative of the health equity…
Already have an account? Log in
Subscribe to keep reading
Unlock the rest of this article — and every article on Citizen Portal.
- Unlimited articles
- AI-powered breakdowns of topics, speakers, decisions, and budgets
- Instant alerts when your location has a new meeting
- Follow topics and more locations
- 1,000 AI Insights / month, plus AI Chat
