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Greer proclaims June 9 Batten Disease Awareness Day and honors local family
Summary
Mayor Rick Banner and the city council proclaimed June 9, 2026, as Batten Disease Awareness Day in Greer and publicly recognized local children and family members advocating for research and awareness.
Mayor Rick Banner and the Greer City Council read and presented a proclamation declaring June 9, 2026, Batten Disease Awareness Day in Greer, honoring local advocates and a family affected by the neurodegenerative disorder.
The mayor invited Amanda and a child identified in the record as Bella (also referenced as Ella) to the podium and described the family’s situation. The proclamation recited public‑education points from the Batten Disease Support and Research Foundation, noting that the condition is a rare, inherited disorder that causes progressive neurological decline and that global estimates and clinical‑trial access remain limited. The mayor encouraged citizens to learn more, support those impacted and join efforts to advance research.
Audience members applauded after the proclamation. Council members and the mayor thanked the family for their advocacy and wished them well as they pursue a gene‑therapy opportunity the mayor described as a possible trip to Chicago for care.
Sources: Mayor’s proclamation and council remarks during the June 9, 2026 meeting.
