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Panel urges DMS to study Medicaid‑funded residential options for people with profound autism
Summary
A committee member told IDD TAC that placement options for people with profound autism are severely limited; the panel moved and approved a recommendation asking DMS to evaluate need and develop Medicaid‑funded autism‑specific residential services modeled on successful programs in other states.
A committee member (Anne, S7) presented on long‑term care needs for people with profound autism and urged the panel to evaluate Medicaid‑funded specialized residential options. "There's nowhere for our kids to go. Nowhere," she said, arguing Kentucky should study community‑driven, non‑institutional models used elsewhere and plan proactively for increasing demand.
Anne moved that IDD TAC recommend to the Medicaid Advisory Committee that the Department for Medicaid Services evaluate current and projected need for specialized long‑term care for individuals with profound autism and complex behavioral and medical needs and develop Medicaid‑funded autism‑specific residential options modeled after successful programs in other states; Melanie seconded. The chair called a roll‑call vote; members voted to approve the recommendation, and staff said they would present it at the upcoming MAC meeting.
Why it matters: committee members described current placement scarcity, caregiver burnout risks and the need to plan for growing cohorts of children with profound needs. The committee’s recommendation asks DMS to evaluate models and report back through the advisory committee process.
