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Descendant recounts Tuskegee abuses and urges continued ethical vigilance
Summary
Lily Tyson Head, president of Voices for Our Father's Legacy Foundation, recounted the deception and denial of treatment suffered by men in the U.S. Public Health Service study at Tuskegee and urged continued adherence to Belmont principles.
At a Belmont Report commemoration at Belmont Manor, Lily Tyson Head described the harms inflicted on men enrolled in the U.S. Public Health Service study in Macon County, Alabama, saying the participants were "lied to, deceived, never informed" and were denied effective medication. "The most grievous part of the study, in addition to being lied to, deceived, never informed, was the denial of a medication that could have cured the disease," she said.
Head identified herself as president of Voices for Our Father's Legacy Foundation and said the foundation was started by descendants of men who took part in that study. She framed her remarks as speaking for her father and other descendants, and said the Belmont Report emerged as a response to those abuses and now provides the ethical framework for research involving human participants.
