Rare Disease Advisory Council, 4.28.26

Rare Disease Advisory Council (RDAC) · April 29, 2026

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Opening and chair's remarks

Presentation

0:04 → 0:26(22s)

Michelle Spencer Manson (co-chair, medical representative to the RDAC) opened the meeting, identified herself, said she would lead the meeting, and asked other RDAC members to introduce themselves.

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The Rare Disease Advisory Council (RDAC) held a regular meeting to discuss legislative priorities including House Bill 5557 and emergency-protocol participation, website development and hosting guidance from the Department of Public Health (DPH), bylaws and member terms, meeting dates and locations, and posted and approved the annual report and minutes.

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Transcript

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