Rare Disease Advisory Council, 7/28/26 Meeting
Rare Disease Advisory Council (RDAC) · July 29, 2026
The Connecticut Rare Disease Advisory Council (RDAC) met in July to hear committee updates, refine bylaws and the annual report, and host an extended public‑engagement session in which families and patient advocates pressed for expanded newborn screening for Gaucher disease, faster roll‑out of the Katie Beckett waiver and more accessible medical equipment and home nursing supports.
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