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Committee approves bill to create Rare Disease Advisory Council; fiscal note expected de minimis
3182395 · May 2, 2025
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Summary
The committee approved H.46 to create a Rare Disease Advisory Council with quarterly meetings and limited per diem exposure; the fiscal office indicated per‑diems for up to eight members across four meetings would remain under $5,000 and that the health department expects to absorb minimal costs.
The House Committee on Human Services voted to approve draft 2.1 of H.46, which would create a Rare Disease Advisory Council and authorize quarterly meetings and limited compensation for members.
Nolan of the Fiscal Office…
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