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Lawmakers hear emotional testimony for IVIG coverage for children with PANS/PANDAS
Summary
Families and pediatric specialists urged the House to require private insurers to cover initial courses of IVIG therapy for PANS/PANDAS, describing dramatic clinical improvements; insurers warned of uncertain fiscal impacts and the committee took no vote.
Families of children diagnosed with pediatric acute‑onset neuropsychiatric syndromes and dozens of medical experts told the House Health Care & Wellness Committee on Jan. 16 that intravenous immunoglobulin (IVIG) therapy can be life‑changing for a small subset of severely affected children and should be covered by private, fully insured plans.
Committee staff described House Bill 2196 as requiring fully insured plans issued or renewed on or after Jan. 1, 2027, to cover an initial three‑month course of IVIG for PANS and PANDAS when certain…
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