Senate backs rare‑disease advisory council, adds long‑COVID resources
The Senate accepted committee recommendations for H46 to create a Rare Disease Advisory Council within the Department of Health, including patient representation, clinician and researcher members, and tasks to improve diagnostics and long‑COVID resources; the chamber ordered third reading.
The full story
The Senate heard testimony and committee reports in support of H46, which would create a Rare Disease Advisory Council within the Department of Health. Committee presenters described gaps in Vermont's rare‑disease care — fragmented services, limited provider awareness and no mechanism for lived‑experience input — and said the council would elevate patient voices, coordinate policy recommendations and support diagnostics and provider resources.
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