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RDAC members warn House Bill 5557 could narrow eligibility if DSM definition is codified

Rare Disease Advisory Council (RDAC) · April 29, 2026
AI-Generated Content: All content on this page was generated by AI to highlight key points from the meeting. For complete details and context, we recommend watching the full video. so we can fix them.

Summary

At a regularly scheduled RDAC meeting, co-chair Leslie Bennett and other members urged colleagues to oppose language in House Bill 5557 that would codify the American Psychiatric Association’s DSM definition of intellectual disability into state law, saying it could narrow eligibility for services and urged members to join a human services committee meeting.

Leslie Bennett, RDAC co-chair and patient advocate, told the Rare Disease Advisory Council that House Bill 5557 would "codify the American Psychiatric Association's definition of intellectual disability as the state statutory definition," a move she said council members fear would narrow eligibility for state services. She urged members to attend a human services committee meeting and to submit comments, saying the change "could affect eligibility for a lot of children with progressive rare disorders."

Bennett said advocates worry the DSM approach is more…

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